Hi and welcome to my page
Posted by wheelyfast on September 9, 2007
G’day everyone,
Well, this is my first post in my exciting new project. The idea behind this blog is that I write about my experiences as a young woman with Cerebral Palsy (CP) and anything else disability related and hopefully it will become a resource for people with CP, their parents, carers, friends families, teachers and basically anyone out there who is interested. I would also like to use it to showcase my writing and as a way of expressing my feelings.
I was asked by my counsellor at the local community centre to write about CP and any related disability issues from my point of view so that it could help raise disability awareness in my community. The only problem she had was that she wasn’t sure how to get my writings out to the community. I suggested a blog because I hope that people who read it will add their own thoughts and experiences in the comments section and this will become an even bigger/better resource.
I’m not sure what I’ll write about first, or how often I’ll write on here. I thought I’d write a little about me and you can learn more and get my medical updates at www.caringbridge.org/visit/karenmelissa . if anyone has any comments or questions or anything to add about what I write up here at any time please leave a comment in the comments section of any post.
My name is Karen and I’m 23 years old and I live in Australia with my parents and dog whose name is Flea and some goldfish. I attend the local TAFE, and university. I love to read and write, watch movies, listen to music and I’m a motor sports fanatic. My favourite colour is purple.
I have a type of cp called Spastic Diplegia . it affects my legs and also my right arm. I am not affected by the CP intellectually in anyway although there seems to be an automatic assumption by the community that I am- that’s a post for another day. I use a wheelchair to get around all the time and have both an electric and a manual chair.
If anyone has any questions or anything you’d like to ask me please leave a comment. I will write again really soon.
Karen
Shirley said
I’m looking forward to following you through this blog. I’ll pass it on to other people I know that would be interested in your story. Shirley in Georgia
Sue said
Hi Karen, I think this is a great ideal and it will be a good thing sharing your experience with others who might be going through the same and hopefully everyone will be able to help and help others. I think it’s good to just write out your feelings also. Keep up the good work of trying to help others while you are dealing with so much yourself……
Sue in Florida…..
Dawn and Alex said
Hi Karen. I think what you are doing is a very good thing. CP has a lot of negative assumptions about it. When someone thinks of CP they automatically put them into a catorgy of being “mentally retarded”. The only reason why some are considered to be mentally retarded is because some are unable to test. Take Alex for an example, he is very very bright, but just because he can not be test due to the fact that he can not vocalize, he is considered to be mentally retarded just beacuse he has to classified.
I have worked with 3 different people who have CP. All different pages and different types. One girl was 33 and has CP because her mother did drugs while she was pregnant. One man who has CP got it because his mother smoked the entire time she was pregnant. The little boy Alex, that I take care of now, is the less servere case I have seen and is is 6. He has CP due to a medical mistake by the doctors and nothing to do with the mother.
I know that you will raise awareness and you are doing a wonderful thing here. Keep up the good work!!!
Emma said
Hey babe,
Sorry I’ve been so out of touch lately. It’s been a little crazy. Love this site, it’s such a great idea. I keep saying I will write a book about my experiences with CP but I never get round to it, LOL!
Let me know if I can contribute any writings or anything to it or if you want me to customise your layout for you (or attempt to talk you thru doing it yourself) – my blog is on wordpress too.
Catch up with you soon, I hope
Emma
pam said
A great idea Karen
SHELLEY said
HI KAREN,
WHAT A HREAT IDEA! AND I AM GLAD YOU ARE DOING ALL YOU CAN TO BRING THE AWARENESS ABOUT CP OUT. YOU ARE A TRUE BLESSING AND SUCH A SWEETIE.
YOU ARE DOING A GREAT THING HERE.
LOVE,
SHELLEY
Lee Hagood said
Hi Karen,
I think this site is a wonderful idea. I personally do not know a lot about CP, but I would like to know more about it, so I can relate to you better. I really enjoy talking to you, but I don’t want to constantly ask you questions about CP, so I can just read about it here. (Then we can talk about other things.) lol I will definitely do my part to spread the word about CP in my area.
Love ya,
Lee
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Built From Skratch said
Just wanted to say hello and great blog!